1. Advocacy Begins with YOU!

It can be scary for persons who are first diagnosed with Kidney Failure and the painful effects of chronic kidney disease and kidney failure (weakness, pain, nausea) does take its toll. But the key to taking control of your health is YOU. Let a relative accompany you during doctor’s appointments and have him/her ask questions and take notes on your behalf until you are strong enough to do these tasks independently. Google search important topics not understood. Do not be afraid to ask questions.

2. Know your Rights and Responsibilities
You have more control than you think over your health! It is important to know your rights and your responsibilities as a dialysis patient. Some of your rights are but not limited to:
Quality Care Individual Treatment:
• Treated with Dignity and Respect
• Privacy and Confidentiality
• Emergency Medical Care
• Dietary Counselling
• Social Work Services
• Formal Complaint Process
• Medical Consultation

Your Responsibilities:
• Be Informed: Learn as much as you can about your kidney disease and how it is treated.
• Follow your treatment Programme
• Be on time for Dialysis Treatment
• Follow facility policies
• Be considerate
• Fulfill financial obligations
– For more info www.kidney.org

3. Prepare To Make Dietary Changes
In order to regain health while on dialysis you need to ensure you eat foods low in sodium, potassium and phosphorus. Talk to your doctor regarding a dietician’s assessment of your individual nutritional needs. You will also have to reduce your liquid intake.

4. You Do Have Options
Finding out which treatment works best for you is the key to a long healthy life.

5. Plan Ahead For Emergencies
Ask your dialysis team about their emergency plan in case of fire or other natural disasters. Ensure you have names, numbers and addresses for hospitals and dialysis centres in your area. Have at least one week supply of emergency medication. Enquire about an emergency meal plan with your dietician.

6. Yes, You Can Travel. Why delay?
Why delay your vacation? Once you have been medically cleared by your Nephrologist, there is no
reason to stay at home. It’s important to plan ahead, call around, schedule appointments with dialysis centres in your destination. Find out which relevant medical documents and blood test needed are to be sent ahead of time to visiting dialysis centre. Thinking of a cruise? Book cruises on Ships with Dialysis facilities on board that can cater to your dialysis needs.

7. Are You Eligible for Medical Insurance?
For persons who have medical insurance, you may be eligible to receive medical coverage. Speak with your insurance agent as well as your social worker for more information regarding access to grants.

8. Protect Yourself
Protect yourself from all viruses in particular the flu and Hepatitis B Virus. Ensure you are fully vaccinated. Get your yearly flu shots. Get a good night’s sleep. Stay away from sick persons. Practice good hygiene wash hands regularly with soap and water. Persons with Catheters are at higher risk for infection, so it is critical you do not get your access wet while bathing. Ensure your dressing remains dry and intact between dialysis sessions. During change of dressings even though you are wearing a mask, look away so as not to breathe on access site.

9. Kidney Disease and Depression
The physical, financial, and emotional effects of Kidney disease and Kidney Failure can lead to depression. Don’t be afraid to speak out. Talk with someone. Seek the support of family and friends. Find out about dialysis support groups as well as church or community groups. Get moving- get clearance from your nephrologist and perform light exercises. Take walks. Talk with persons who are healthy and living long on dialysis.
Focus on your blessings.

10. Don’t Be Afraid to Ask
According to The World Journal of Nephrology, there is an 80% prevalence of erectile dysfunction in male patients with chronic Kidney disease. Don’t be afraid to speak with your nephrologist regarding your options.

Enquire about medications that may interfere with your penile erection. Control your blood sugar levels. Ensure you control anemia and hyperparathyroidism.